Some of the most important legislative work that I do is meeting with constituents when they come to Washington to talk to me about their issues and how they want me to respond here in Washington.
I had a number of constituent meetings this week (check out our social media for a full rundown of who came to town), but the most impactful was the Manni family. The Manni family’s 5-year-old son, Locklynd was diagnosed at just 2 months old with Type 1 Spinal Muscular Atrophy. It’s a rare and devastating disease that affects motor nerve cells in the spinal cord and inhibits muscle development. But thanks to early detection and intervention, Locklynd is thriving — and, I might add — funny and smart as a whip.
Locklynd is getting world-class care at Helen DeVos Children’s Hospital back home, but came to Washington to talk to me about the need to continue to advocate for funding for research, and to continue to make the medicine he receives affordable and accessible for all. Locklynd — I heard you loud and clear, buddy! I’m on it!